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Surf these sites:
A1AD - Alpha1 Antitrypsine Deficiency: Introduction -- This site is a resource of links associated with A1AD or Alpha1-Antitrypsine Deficiency. It is one man''s perspective and list of links and other resources from the internet.
Laurence Moon Bardet Biedl Society Web Site UK -- Fully accessible site for people with lmbbs, their families, friends, carers and interested professionals. Opinions, News, Views, Research Updates, Contact Info
Treacher Collins Syndrome - A Personal View -- UK based website, containing information about the disorder, with helpful links and discussion forum.

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