Surf these sites: Ocular Manifestations of von Hippel-Lindau (VHL) disease -- by Emily Chew, M.D.,National Eye Institute; Retinal angioma in the eye may be one of the earliest manifestations of VHL disease Radiology: Von Hippel Lindau Disease -- Genetic, Clinical and Imaging Features from the NIH. VHL -- Description of the characteristics and the development of VHL; VHL gene map; How VHL received its name Von Hippel Lindau Disease treatment, prevention and much more -- A wide range of helpful Von Hippel Lindau Disease information concerning treatment, prevention, diagnosis, email groups, support groups, personal stories and much more. Updated regularly. Von Hippel-Lindau (VHL) Family Alliance -- A genetic condition involving the abnormal growth of blood vessels in some parts of the body which are particularly rich in blood vessels. While blood vessels normally grow like trees, in people with VHL little knots of capillaries sometimes occur. These little knots are called angiomas, or hemangioblastomas. Von Hippel-Lindau Syndrome -- Links to chat rooms, web sites and information about Von Hippel Lindau''s Disease
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