Surf these sites: CGD Home Page -- Chronic granulomatous disease website. CGD is an immune system disorder which affects the phagocytes. The website has information and a message board. CIPO Home Page -- Canadian Immunodeficiencies Patient Organization Home Page. Information in English and French. CVID - A List of Interesting Immunology Sites -- Common Variable Immunodeficiency is a disorder characterized by unusual infections and low levels of serum - immunoglobulins (antibodies). This site provides many links to useful resources. Cd5 - Cd19 PID -- Cd5 - Cd19 PID, involves a complete and total lack of response to polysaccharide antibodies and an extremely high expression of Cd5+ B-cells. Chronic Granulomatous Disease (CGD) -- A wide range of Chronic Granulomatous Disease (CGD) links concerning treatment, prevention, diagnosis, email groups, support groups, personal stories, and much more. Updated regularly. Forest''s Omenn Syndrome Page -- This website provides information on one of the rarest of Primary Immunodeficiencies, Omenn Syndrome. It also chronicles Forest(a little boy with Omenn Syndrome)through his BMT. IPOPI -- International Patient Association for Primary Immunodeficiencies. Immune Deficiency Foundation -- Their mission: "To improve the diagnosis and treatment of patients with primary immunodeficiency diseases through research and education." IDF is a national, non-profit organization. ImmuneDisease.com -- In-depth information for consumers and healthcare professionals on immunology, primary immune deficiency diseases, and treatment with intravenous immune globulin, also called immunoglobulin or IGIV or IVIG. Also features daily immunology news and free Medline literature search. Jeffrey Modell Foundation -- A non-profit research foundation devoted to primary immune deficiency. NIH Primary Immunodeficiency Diseases -- An overview of the primary immunodeficiency diseases, the significant accomplishments of NIAID-supported investigators in characterizing these diseases and their causes and in developing new therapies, and the prospects for the future when it may become possible to correct the abnormalities and cure these diseases. Norsk Immunsviktforening -- The web site of the Norwegian association working with the primary immunodefiencies. The organization is a member of IPOPI. Information in Norwegian and English. Pediatric Primary Immune Deficiency -- This site deals with the diseases associated with congenital and inherited T cell and/or B cell immune deficiency. Mostly focusing on the pediatric population. Has a listserv for parents to discuss related issues. Primary Immune Deficiency Web Ring -- The PID Webring links together pages concerning Primary Immunodeficiencies. A useful research tool. Follow the ring to learn more. Primary Immunodeficiency Association Web Site -- British information and support group. "Supporting people with, and promoting awareness of, primary immunodeficiencies and disorders of the immune system". SCID Homepage -- SCID is a primary immune deficiency. The defining characteristic is usually a severe defect in both the T- & B-lymphocyte systems. This usually results in the onset of one or more serious infections within the first few months of life. Severe Combined Immunodeficiency (SCID) Hope Through Research -- One family''s battle with SCID over 3 generations. When the Body''s Defenses are Missing--Primary Immunodeficiency -- Booklet by The National Institute of Child Health and Human Development.
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